About the Macie Jo Foundation
We are a patient-family led organization that collaborates with expert clinicians and researchers to better understand, prevent, and treat HIE.
Our Mission
The Macie Jo Foundation is on a mission to create a world where no child's life is lost to hypoxic ischemic encephalopathy.
Our Vision
Our vision is a world where the diagnosis of HIE is no longer part of any family’s story.
Our History
The Macie Jo Foundation was launched in December of 2023 by Amy and Jonathan White after their daughter, Macie, was diagnosed with severe HIE. At the launch of MJF, Amy and Jonathan embarked on a mission to connect the millions of other families worldwide navigating this traumatic journey. Today, patient-families and experts from around the world work together to improve outcomes for the most vulnerable infants at risk of HIE.
What We Do
There is much work to be done to prevent HIE. We are working tirelessly to better understand and build a world without this devastating condition.
Family Resources
Helping families understand the condition, navigate the NICU, and find support.
HIE Awareness Month
Our goal is for all states to declare and recognize April as HIE Awareness Month.
Advance HIE Research
By funding innovative studies and fostering collaboration, we are improving the outcomes for children with HIE.
Leadership
Amy White
Founder/Executive Director
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Taylor Bloomfield
Vice President
Roderick Read
Treasurer
Marissa Mead
Secretary
Julie Clark
Director
David Hodges
Director
Darin Salloum
Clinical Researcher, Scientific Advisory Board
Gabriella Pelletier
Director of Partnerships
Family-Centered Care
At the Macie Jo Foundation, family-centered care means partnering with parents every step of the way—offering support, resources, and a compassionate community to help families navigate life with HIE from hospital to home and beyond.