Family Stories
The Macie Jo Foundation shares stories to show how real families and clinicians are affected by this devastating condition. Our stories demonstrate the urgency of our mission.
If you have been touched by HIE, please share your story to help advance the Macie Jo Foundation's work and impact.

Turning hope into action through storytelling
Discover the powerful stories of families affected by hypoxic ischemic encephalopathy (HIE). These stories highlight the urgent need for a world free from HIE. We are deeply grateful for the bravery of the families who have battled HIE and courageously shared their journeys with us. By opening their hearts to convey their grief, love, and hope, they help us confront the harsh reality of this condition. Their experiences inspire a shared vision for a future without HIE, honoring the strength and resilience of every child and family touched by this challenge.